Getting back to "normal"?

I think my last post indicated that we were still waiting on Jordon's numbers to return to normal.  Well soon after that, his A.N.C. hit a big jump and they decided that that would be his last nurse visit/blood draw at home.  So we were kind of clueless as to where we go from there.  All of a sudden we go from nurses, doctors, specialist visits, calls, hospital stays TO life as we once knew it.  This is all comforting but also scary.  I have concerns like "what if Jordon runs a fever"?  Nurse's response "give him Motrin or Tylenol".  Noone ever tells you that the end of treatment can be just as scary as the beginning.  You never expect to worry more when your child is cancer free than you did when he had cancer.

We still pray every night for Jordon's health and our peace of mind.  And as many struggles as I have had in the past with worry, I do have to say I am unusually calm and at peace about Jordon's health.  I do believe he looks healthier than I have ever seen him look before.  His muscle tone is returning, his hair is back and for a child that was so pale before, color has appeared in his cheeks.  He looks and feels great (with the exception of his ankle which still bothers him daily). 

We haven't been without doctor's completely these last few weeks.  The first two visits came when he returned for a x-ray and check up for his biopsy.  The x-ray looked great and he has healed very nicely from the incisions from the biopsy.  Then we had an ER visit because something has "popped" in his chest.  Since the port is still in place we wanted to make sure that everything looked ok, so Jordon had yet another x-ray.  Not really sure what the "pop" was, but the port and everything looked great.  The next visit came when they called me and said that he was still suppose to be receiving breathing treatments once a month to protect him from a dangerous pneumonia.  He has received the treatments throughout the course of his therapy, but I assumed once therapy was done, he no longer needed the breathing treatments.  To protect immunosuppresed children they continue the treatments for six months after therapy.  By the grace of God they caught this.  They opened up his file and realized he hadn't received the treatment when he should have.  The called us up and immediatly administered it (it was over a month behind when he should have received it).  What I think happened is that when they reviewed the x-ray from the mysterious popping in his chest, they opened his file and realized that he hadn't been seen for the breathing treatment.  Like I said, by the grace of God.  The most recent visit came when we took him to the ER to get his ankle re-x-rayed.  He is still having some issues with it hurting constantly and at times it hurts severely.  The x-ray came back with no findings so we will discuss the possible causes with the oncologist next time we visit with her.  Jordon is scheduled to go back for his three month follow up scan on the 24th of this month.  I can't believe it has been almost three months already and every day he is cancer free is a day closer to him being cured forever!  Jordon will also see his oncologist this day and be getting routine bloodwork done also-we have not seen her in three months!  My, how it flew by.

In between trips to Children's, Jordon has been getting back into the swing of things.  He finished out a season of basketball and has hopped right into baseball.  Unfortunatly, he will have to miss some games over the next couple of weeks of baseball until we figure out what is going on with his ankle.  Also, after finding out Jordon was cancer free (love saying that), I wanted to surprise the kids with something I thought everyone should do atleast once in their lifetime and since all three kids are the perfect ages for it, we went to Disney.  None of us have ever been (except Kenny) so I thought it was something we needed to do-especially when you are hit with the reality that life can change in the BLINK of an eye. It was a crazy fun short "working" vacation. Then Make-A-Wish called us and said that they had booked Jordon's trip to the final four (we weren't sure this was gonna happen because the doctors had prepared us for a bone marrow transplant and when we were told Jordon was cancer free we thought it may be to late to plan a trip to the final four, Jordon was thinking that he would have to wait until next year).  Make-A-Wish made everything so perfect for Jordon from seeing us off at the airport with lots of gifts to taking us to the championship game in a limo, Jordon had the trip of his dreams.  This organization is completely AMAZING!!!  Every day Jordon had a surprise and he met so many sports personalities.  It was truly a wish come true!

So the next step is the routine three month check up, which will be Tuesday.  We have been to Children's nearly every week since Jordon finished treatment, but the trips ARE becoming less frequent and are trips not overnight stays.  Jordon is taking the MAP test this week and I can't help but be thankful for that.  Thankful that he is getting back to "normal".  Going to school "full"time with an outlook on life that some of us may never achieve.  So thankful for everyone that has made this transition smooth and loved us beyond imagination!