Number 24

Number 24

Thursday, August 18, 2011

We have been home for a few days now and have been busy busy.  Since being home Jordon has been very "at home".  He is relaxed and mobile without having a bag of fluids to lug around.  His appetite has been the main concern since being home.  I told him yesterday I was going to the store to get him WHATEVER he wanted.  His response was, "nothing".  At this point I would like it if he told me he wanted an ice cream sandwich for breakfast, but his taste buds desire nothing.  When I went to the store today, I picked up "healthy" choices for foods-even though the doctors tell me to let him eat whatever he wants, and not to worry when he doesn't eat, I want to have healthy options for him when he decides he is hungry.  That is not to say that if he tells me he wants something specific I will not go get it for him if the stores are open.  So when I got home, he ate a large bowl of granola with milk.  He loved it!  A prayer for Jordon would to be that his body optimally maximizes the benefits of any food that he may be able to stomach at this time.

Jordon was unable to attend school the first day.  He slept late this morning, and since today is day 9 since the first day of the last chemo treatment, I assumed he was neutropenic (his immune system is shut down).  They say this can make a kid very tired-and that he was.  The nurse came by today to draw his blood, and after noon I spoke with her and she told me his A.N.C (absolute neutrophil count) was 45.  Anything under 500 puts him at severe risk of infection, so it is a good thing he didn't attend school today.  Our hope is that his A.N.C. is on its way back up so that he may be able to attend school on Monday.  Please also pray that he does not run a fever this time and that no germs make their way into his fragile body.  

Life has returned to a bit of normal.  The girls are back in school, I was able to go to work a couple days this week, and Jordon loves being home.  The girls REALLY enjoyed their first day of school.  I am sure that they think about Jordon often throughout the day, but feel a comfort in going to school where life becomes something more than the complete unknown.  I also enjoyed working where I have a bit of structure again.  And there is comfort in knowing that our family is dealing with the unknown and moving forward with a life that we have always known.  Things changed but life does not become unmanageable.

The Lord is my sheperd, I shall not want. Psalm 23:1

No matter our circumstances, we have peace.


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