Yea! Home again, let's pray it is for a week.

I have decided that the reason the Lord enabled me to take the reigns as primary caregiver in this situation is because Jordon and I were long due for some mommy and son time.  We have had some awesome times and conversations over the last few weeks and particularly the last few days.  For example, last night Jordon allowed me to sleep in his hospital bed with him.  He began to poke my eye and flick my nose.  When I told him I couldn't rest like that and tried to get up he begged me to stay in the bed with him.  I have to say, it was sweet and we slept fairly well (even with both of us and all his wires in that twin hospital bed).  The last few days we played Monopoly (what a long game), and Sorry.  We talked about school and sports and whatever else came to mind.

This morning they drew Jordon's blood to see if his immune system was high enough to go home.  Yesterday he was still without one.  But this morning they told us his immune system was really good and that we could go home (his was slightly below what yours and mine would be).  Some kids go a very long time without having an immune system, Jordon was neutropenic (without an immune system) for 4 days at the most, which is very good.  So next week when he goes in for another round of chemo he will be ready to go.  They also told us that his cultures were negative for any infection and we will never know what the fever was from.

Today we discovered that Jordon is losing his hair.  He is okay with it and he even made the comment that he may donate it and that he always wanted to know what it was like to be bald like his grandpa.
Right now we are relaxing at home.  I am glad we got the first fever out of the way (again one of those "firsts").  It is like bringing your firstborn baby home from the hospital, but this time they do give you a manual (a few 100 page manual).  It is similar in the way that you have no idea what to do or expect until you go through it.  And just like a newborn, he eats a different diet, anyone that touches him must use hand sanitizer, and he sleeps a lot.  Once the firsts are out of the way, it becomes a part of your life like you never expected.  As some would say about parenting and those that have dealt with cancer, you begin to become a "natural" at it.  You always hear that the Lord will never give you more than what you can handle.  Even though I always thought I could never handle one of my children having a life threatening disease, I still believe that He will never give you more than you can handle.  Because like I have blogged before, with Him AND ONLY with Him you can handle ANYTHING.

Prayer for tonight are that we enjoy our time at home and that we will continue to be able to handle all the firsts.  Praise is that we are at home :).