Number 24

Number 24

Tuesday, January 3, 2012

Tuesday the kids and I headed to Children's.  When we arrived they checked Jordon into clinic (first time receiving chemo in the clinic-he is usually admitted to the hospital).   They always check Jordon's weight, height (not sure how much this can change when your are seen every few weeks), temperature, oxygen, heart rate, and blood pressure.  In the past Jordon has generally had a low blood pressure.  For him 80/40 became the normal.  His "normal" heart rate is generally around 60.  So while this appears abnormal this became Jordon's normal.  The doctors explained that since Jordon was so active his blood pressure and heart rate were lower.  Well... when we arrive on Tuesday his blood pressure was 132/90, not just high but abnormally high for him and his heart rate was in the 90's.  They rechecked it a few times and after the fourth time Jordon was to lay very still, turn off all noise (t.v. and iPad) and the recheck was 112/72 (better but still not his normal).  We are not clear as to why these numbers have changed.

Tuesday was a long day of chemo.  We were in the clinic for nearly 7 hours but the girls never appeared restless and they helped the day go by.  Jordon wasn't feeling up to doing anything so we went to eat and then to the hotel.

On Wednesday and Thursday by the afternoon we were able to spend a little time in St. Louis.  We enjoyed a mini vacation in between and after Jordon's treatments.  We arrived home on Thursday night.

Friday Jordon was able to participate in a basketball tournament.  He played two games Friday night and two games on Saturday.  The team won all four games and first place.

I am truly amazed that Jordon felt up to playing basketball.  He has moments that he doesn't feel 100% but it never stops him.  I myself was feeling a little under the weather last week and often asked myself how he does it.  I didn't want to walk across the room at times, let alone play a basketball game.  I am so proud of him and it makes me happy that he is not letting cancer get the better of him.  Our lives have been touch by cancer, but we don't have to live our life around it.

The last few nights Jordon has been feeling a bit dizzy in the evenings.  Our hope is that it is a temporary side effect of his prednisone and that it will go away when he is off that medication.  His doctor is not concerned at this point because his blood pressure was normal today and he feels fine during the day. We are prayerful that it is not a long term or permanent side effect.

Jordon's next chemo visit is January 24 for a 3 day admission.  If all goes according to his protocol this will be the final treatment.  When children finish treatment they get to ring a bell and parade around the floor.  It is a big event that Jordon has watched several kids do.  He is excited to do this and he wants friends and family to be there.  This will take place on the 26th of January (if all goes according to the protocol-of course the Lord may have a different plan).  Then on the 31st Jordon is to have another PET scan.  Prayerfully this scan will be clear!

Thank you for continually going through this journey with us.










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