Number 24

Number 24

Wednesday, July 13, 2011

This morning we woke up and as such with the days prior, we did not know what today would bring.  I use to be able to predict most of my day.  I knew that I would wake up at a certain time, drop the kids off at school at a certain time, go to work at a certain time, and come home and cook dinner at a certain time (Rebekah if your reading this don't comment).  The day we discovered Jordon had a tumor in his chest it is as if EVERYTHING else drifted away and that became our ONLY focus.

Today Jordon was woke around 7:00 am.  They quickly began prepping him for the operating room.  At exactly 8:00 am they came to take him down to get the spinal tap, bone marrow biopsy, and put chemo into his spinal fluid.  I was getting dinner last night when the anesthesiologist came so I hadn't gotten a chance to talk to her.  So right before they wheeled him into the OR they explained to me that this was and extremely risky procedure because of where the tumor was located.  She explained that they were going to make Jordon as comfortable as possible but could not put him to sleep fully because if his muscles relaxed to much it would not hold the mass up and potentially squish his heart or airway.  So with that being said she wanted to let me know that even making him drowsy could be very risky.  I told them that I had been monitoring his oxygen levels in the night and they were higher when he was on his right side.  After an hour of waiting they came in and said the procedure went GREAT!  They decided to have him sit up and lean over a table to do the procedure (similar to that of an epidural).  They then had me come back to see him but warned me that he would be acting funny.  When I walked in to see him it was difficult to see him as they had given him a drug that made him hallucinate so that he would not remember the pain of the procedure.  He was telling me things like that I had The Beatles dancing on the back of my head singing "I Wanna Hold Your Hand" and then he would start singing it.  He also saw a large gorilla on our house eating a banana and a girl selling pickles that liked him.  Again that was difficult but at one point I just wanted to reassure Jordon that Jesus loved him and he said "I know he is right in the middle of my heart".  They assured me that all the visions were completely normal and they said at least he is having good visions.  

When we got back to the room Jordon felt great!  He said that he had no pain but the area they did the biopsy's were tender.  The doctor took me and Kenny to a conference room to discuss the medications he would be on for his treatment.  Can I say WOW!  As a parent you know that you cannot go home and just do some "clean" eating or natural medicine to cure this.  But when they go over the medications and their common symptoms, occasional symptoms, and rare symptoms you become a little reluctant.  They told us Jordon WILL lose his hair (which he is not concerned with) and that with the steroids he is apt to be irritable.  When we got back to the room we could tell they had given him the steroids.  He is a different kid but we know that we must put faith in our doctors and that he will be his old self soon.

So now again we wait.  We will wait for the biopsy results and they say they may come in as early as Friday.  We pray for the cancer to not be in his spinal fluid or bone marrow.  We pray for peace for Jordon and our family.  Personally I feel as though after we received the news, I needed a really good hug and my head is resting on the chest of the Lord.  He has totally wrapped His arms around us and is giving us a BIG hug.  

Here is a pic of Jordon putting together some legos.  He has rediscovered his love for building.  He doesn't look a bit different and I wanted you all to see how happy and good he looks.  

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