Number 24

Number 24

Tuesday, July 12, 2011

Time after Time

We have been at St. Louis Children's since Saturday early morning.  Since that time Jordon has been through several test.  The first test was a biopsy to determine what type of mass was in his chest.  They were concerned with the mass compromising his airway so they could not put him to sleep.  Along with the biopsy they decided to put a picc line in so that they could start treatment to shrink the tumor when they found out what it was.  They told us that the preliminary results would be back Sunday and the final results as early as Monday.  So we began to wait.
Sunday the preliminary results showed that it was probably not an aggressive tumor and not lymphoma.  And I like I said they said PROBABLY.  Since they didn't think that the mass was aggressive they told us we could leave the PICU.  They put us on floor nine which is the oncology floor since we would have an oncology doctor no matter what.  So again we waited.
So that brings us to Monday.  By this time I am guessing we have seen around 30 doctors.  Jordon got to get up and walk around today and use the bathroom.  He even was able to get disconnected from IV if he promised to drink.  Although Jordon hadn't ran a fever the past couple of days he began to run another low grade fever.  Jordon has not had ANY pain medication except for the biopsy.  And even though he has not had any pain medication he has not complained of ANY pain since the day we were admitted to the hospital.

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